- Alex, The Leukodystrophy Charity
- £32,000.00 - £32,000.00
- Salary type
- Per annum (FTE)
- Working hours
- Part Time
- Working arrangement
The role will focus on improving the emotional health and wellbeing of the beneficiaries of Alex TLC i.e. those affected by leukodystrophy.
Contract: Fixed term, 5 years
Hours: Part-time; flexible working pattern; 14 hours per week
Salary: £32,000 per annum FTE
Location: The role is home based. Desk space is available at the Alex TLC Head Office, 45 Peckham High Street, London SE15 5EB if required.
Main activities and responsibilities
- Providing counselling face to face, over the telephone, or online
- Working with individuals, families, or groups
- Promotion and development of our peer support network
- Keeping confidential and up to date records
- Building a relationship of trust and respect with beneficiaries
- Listening to beneficiaries' concerns, empathising with them, and helping them to see things more clearly or in a different way
- Providing advocacy at professional meetings eg social services and appropriate referrals
- Access to personal debriefing resources
- Full comprehension of Alex TLC policies, systems and processes
- Raising awareness through conference attendance and presenting opportunities.
- An accredited, qualified counsellor, registered with the British Association for Counselling and Psychotherapy
- A relevant qualification in grief and bereavement counselling
- A relevant qualification related to long term health conditions
- At least two years working experience (post qualification)
- Knowledge of statutory service infrastructure
- Understanding of the emotional challenges caused by neuro-degenerative conditions
- Experience working with individuals and families in crisis
- Understanding of the work of Alex TLC, leukodystrophies, rare disease challenges and opportunities
- Lived or work experience of leukodystrophy or a similar rare disease
- Experience of working within an advisory service environment
- Listening skills
- Empathy and understanding
- A non-judgemental attitude
- Patience and a calm manner
- Ability to cope with emotional situations
- Ability to relate to and adapt communication style to suit a wide range of people
- Ability to engage people effectively in a one-to-one or group setting
- Ability to respond to client or manager feedback and improve services
- An open minded and challenging approach to work
- Excellent communication skills
- Excellent planning and organisational skills
- Excellent IT skills: MS Office
- Ability to work in a team, as well as independently
- Project planning and development
- Impact reporting.
How to apply
Please send a CV and covering letter outlining your motivation to apply to:
Closing date for applications: 5pm, Wednesday 2 November 2022.
Interviews will be conducted via Zoom during early November 2022.
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